Purchase one-time access:Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online access
One-time access price info
- For academic or personal research use, select 'Academic and Personal'
- For corporate R&D use, select 'Corporate R&D Professionals'
- A CFTR potentiator in patients with cystic fibrosis and the G551D mutation.N Engl J Med. 2011; 365: 1663-1672
- Practice guideline for the treatment of patients with bipolar disorder (revision).Am J Psychiatry. 2002; 159: 1-50
- Relevance of genetics and genomics for prevention and treatment of cardiovascular disease: a scientific statement from the American Heart Association Council on Epidemiology and Prevention, the Stroke Council, and the Functional Genomics and Translational.Circulation. 2007; 115: 2878-2901
- Genetic and genomic literacy in pediatric primary care.Pediatrics. 2013; 132: S198-S202
- Health supervision for children with Down syndrome.Pediatrics. 2011; 128: 393-406
CSHCN, 2009–10. Unmet need for family genetic counseling. Available at: http://www.childhealthdata.org/browse/survey/results?q=1705&r=1. Accessed July 12, 2014.
- Genetic counseling, insurance status, and elements of medical home: analysis of the National Survey of Children With Special Health Care Needs.Matern Child Health J. 2007; 11: 559-567
- Access to genetic counseling for children with autism, Down syndrome, and intellectual disabilities.Pediatrics. 2009; 124: S443-S449
- Children's eligibility and coverage: recent trends and a look ahead.Health Aff. 2007; 26: w618-w629
- Predictors of delayed or forgone needed health care for families with children.Pediatrics. 2012; 130: 1027-1037
- Differences in risk factors for children with special health care needs (CSHCN) receiving needed specialty care by socioeconomic status.BMC Pediatr. 2009; 9: 48
- Racial and ethnic disparities in access to care for children with special health care needs.Ambul Pediatr. 2002; 2: 247-254
- Supply and utilization of pediatric subspecialists in the United States.Pediatrics. 2014; 133: 1061-1069
- Do unmet needs differ geographically for children with special health care needs?.Matern Child Health J. 2013; 17: 505-511
- Unmet need for routine and specialty care: data from the National Survey of Children With Special Health Care Needs.Pediatrics. 2004; 113: e109-e115
- Nonresponse in the National Survey of Children's Health, 2007.Vital Heal Stat 2. 2012; : 1-22
- An analysis of nonresponse bias resulting from non-resolution of telephone numbers, eligibility screener nonresponse, and interview nonresponse for the national immunization survey.in: American Statistical Association Section on Survey Research Methods. American Statistical Association, Anaheim, Calif2007: 3372-3379
National Center for Health Statistics. 2009–2010 National Survey of Children With Special Health Care Needs frequently asked questions. 2011. Available at: http://www.cdc.gov/nchs/data/slaits/NSCSHCNfaqs2009.pdf. Accessed September 16, 2013.
National Survey of Children With Special Health Care Needs (NS-CSHCN) MCHB core outcomes. Available at: http://childhealthdata.org/docs/cshcn/level-1_outcomes-01-vs-05_final-pdf.pdf. Accessed October 13, 2014.
National Survey of Children With Special Health Care Needs. Maternal and Child Health Bureau core outcomes for CSHCN: trending across years. Available at: http://childhealthdata.org/docs/default-document-library/nschscn-trending-outcomes-synopsis_05-vs-09.pdf. Accessed October 13, 2014.
- How do primary care physicians manage children with possible developmental delays? A national survey with an experimental design.Pediatrics. 2004; 113: 274-282
- Screening for developmental delays among young children—National Survey of Children's Health, United States, 2007.MMWR Surveill Summ. 2014; 63: 27-35
- Association of functional limitation with health care needs and experiences of children with special health care needs.Pediatrics. 2008; 121: 994-1001
- Genetic testing and genetic counseling among Medicaid-enrolled children with autism spectrum disorder in 2001 and 2007.Hum Genet. 2014; 133: 111-116
- Parental limited English proficiency and health outcomes for children with special health care needs: a systematic review.Acad Pediatr. 2014; 14: 128-136
- Genetic services for common complex disorders: surveys of health maintenance organizations and academic genetic centers.Genet Med. 1999; 1: 272-285
- Health insurance coverage of genetic services in Illinois.Genet Med. 2010; 12: 525-531
- Disparities in BRCA testing: when insurance coverage is not a barrier.Am J Surg. 2009; 198: 562-565
- Association between underinsurance and access to care among children with special health care needs in the United States.Pediatrics. 2005; 116: 1162-1169
- Family out-of-pocket health care burden and children's unmet needs or delayed health care.Acad Pediatr. 2014; 14: 101-108
- A public health education initiative for women with a family history of breast/ovarian cancer: why did it take Angelina Jolie?.J Obstet Gynaecol Can. 2013; 35: 689-694
- Personalised risk communication for informed decision making about taking screening tests.Cochrane Database Syst Rev. 2013; : CD001865
National Society of Genetic Counselors. Professional Status Surveys, 2005/2010. Chicago, Ill: National Society of Genetic Counselors.
- Factors which impact the delivery of genetic risk assessment services focused on inherited cancer genomics: expanding the role and reach of certified genetics professionals.J Genet Couns. 2014; 23: 522-530
Center for Consumer Information and Insurance Oversight. Affordable Care Act implementation FAQs—set 12. 2013. Available at: http://www.cms.gov/CCIIO/Resources/Fact-Sheets-and-FAQs/aca_implementation_faqs12.html. Accessed January 31, 2015.
The authors declare that they have no conflict of interest.