Abstract
Background and Objective
Racial disparities in diagnosis and receipt of services for early childhood developmental
delay (DD) are well known but studies have had difficulties distinguishing contributing
patient, healthcare system, and physician factors from underlying prevalence. We examine
rates of physician diagnoses of DD by preschool and kindergarten entry controlling
for a child's objective development via scoring on validated developmental assessment
along with other child characteristics.
Methods
We used data from the preschool and kindergarten entry waves of the Early Childhood
Longitudinal Study, Birth Cohort. Dependent variables included being diagnosed with
DD by a medical provider and receipt of developmental services. Logistic regression
models tested whether a child's race was associated with both outcomes during preschool
and kindergarten while controlling for the developmental assessments, as well as other
contextual factors.
Results
Among 7950 children, 6.6% of preschoolers and 7.5% of kindergarteners were diagnosed
with DD. Of preschool children with DD, 66.5% were receiving developmental services,
while 69.1% of kindergarten children with DD were receiving services. Children who
were Black, Asian, spoke a primary language other than English and had no health insurance
were less likely to be diagnosed with DD despite accounting for cognitive ability.
Black and Latinx children were less likely to receive services.
Conclusions
Racial minority children are less likely to be diagnosed by their pediatric provider
with DD and less likely to receive services despite accounting for a child's objective
developmental assessment. The pediatric primary care system is an important target
for interventions to reduce these disparities.
Keywords
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References
- Prevalence and trends of developmental disabilities among children in the United States: 2009-2017.Pediatrics. 2019; 144https://doi.org/10.1542/peds.2019-0811
- The effectiveness of early childhood development programs. A systematic review.Am J Prev Med. 2003; 24: 32-46https://doi.org/10.1016/s0749-3797(02)00655-4
- The Pediatrician's Role in Development and Implementation of an Individual Education Plan (IEP) and/or an Individual Family Service Plan (IFSP).Pediatrics. 1999; 104: 124-127https://doi.org/10.1542/peds.104.1.124
- Smedley BD Stith AY Nelson AR Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care. National Academies Press, Washington, DC2003 (Copyright 2002 by the National Academy of Sciences. All rights reserved)
- Prevalence of developmental delays and participation in early intervention services for young children.Pediatrics. 2008; 121: e1503-e1509https://doi.org/10.1542/peds.2007-1680
- Racial/ethnic disparities in the identification of children with autism spectrum disorders.Am J Public Health. 2009; 99: 493-498https://doi.org/10.2105/AJPH.2007.131243
- Race differences in the age at diagnosis among Medicaid-eligible children with autism.J Am Acad Child Adolesc Psychiatry. 2002; 41: 1447-1453https://doi.org/10.1097/00004583-200212000-00016
- Race/ethnicity and insurance status as factors associated with ADHD treatment patterns.J Child Adolesc Psychopharmacol. 2005; 15: 88-96https://doi.org/10.1089/cap.2005.15.88
- Disparities in primary care for vulnerable children: the influence of multiple risk factors.Health Serv Res. 2006; 41: 507-531https://doi.org/10.1111/j.1475-6773.2005.00498.x
- Disparities in provider elicitation of parents' developmental concerns for US children.Pediatrics. 2011; 128: 901-909https://doi.org/10.1542/peds.2011-0030
- Minorities are disproportionately underrepresented in special education: longitudinal evidence across five disability conditions.Educational Researcher. 2015; 44: 278-292https://doi.org/10.3102/0013189X15591157
- Are minority children disproportionately represented in early intervention and early childhood special education?.Educational Researcher. 2012; 41: 339-351
- Trends in the prevalence of developmental disabilities in US children, 1997–2008.Pediatrics. 2011; 127: 1034-1042https://doi.org/10.1542/peds.2010-2989
- Part C early intervention for infants and toddlers: percentage eligible versus served.Pediatrics. 2013; 131: 38-46https://doi.org/10.1542/peds.2012-1662
- Identifying Infants and Toddlers at High Risk for Persistent Delays.Matern Child Health J. 2016; 20: 639-645https://doi.org/10.1007/s10995-015-1863-2
- Ethnic group differences in early Head Start parents’ parenting beliefs and practices and links to children’s early cognitive development.Early Childhood Res Quart. 2009; 24: 381-397https://doi.org/10.1016/j.ecresq.2009.08.002
- “Who is sitting across from me?” Immigrant mothers' knowledge of parenting and children's development.Pediatrics. 2004; 114: e557-e564https://doi.org/10.1542/peds.2004-0713
- Measuring the quality of preventive and developmental services for young children: National estimates and patterns of clinicians' performance.Pediatrics. 2004; 113: 1973-1983
- Racial and ethnic disparities in pediatric experiences of family-centered care.Med Care. 2010; 48: 388-393
- Anticipatory guidance: what information do parents receive? What information do they want?.Arch Pediatr Adolesc Med. 2000; 154: 1191-1198
- Disparities in diagnosis and access to health services for children with autism: data from the National Survey of Children's Health.Journal of Developmental & Behavioral Pediatrics. 2008; 29: 152-160
- Factors associated with age of diagnosis among children with autism spectrum disorders.Pediatrics. 2005; 116: 1480-1486
- Comparison of referral rates for preschool children at risk for disabilities using information obtained from birth certificate records.The Journal of Special Education. 2006; 40: 28-35
- Using linked data to assess patterns of early intervention (EI) referral among very low birth weight infants.Matern Child Health J. 2008; 12: 24-33
- The associations of clinicians' implicit attitudes about race with medical visit communication and patient ratings of interpersonal care.Am J Public Health. 2012; 102: 979-987https://doi.org/10.2105/AJPH.2011.300558
- Implicit bias among physicians and its prediction of thrombolysis decisions for black and white patients.J Gen Intern Med. 2007; 22: 1231-1238https://doi.org/10.1007/s11606-007-0258-5
- The influence of implicit bias on treatment recommendations for 4 common pediatric conditions: pain, urinary tract infection, attention deficit hyperactivity disorder, and asthma.Am J Public Health. 2012; 102: 988-995https://doi.org/10.2105/AJPH.2011.300621
- Periodic survey of fellows# 53: Identification of children< 36 months at risk for developmental problems and referral to early identification programs. 2007; 11
- Barriers to evaluation for early intervention services: parent and early intervention employee perspectives.Acad Pediatr. 2012; 12: 551-557https://doi.org/10.1016/j.acap.2012.08.006
- Healthy Steps for Young Children: sustained results at 5.5 years.Pediatrics. 2007; 120: e658-ee68
- A parent coach model for well-child care among low-income children: a randomized controlled trial.Pediatr [Internet]. 2016; 137 ([cited 2017 Mai 23])e201553013
- Use of videotaped interactions during pediatric well-child care to promote child development: a randomized, controlled trial.J Dev Behav Pediatr. 2005; 26 (JDBP): 34-41
- Long-term reduction in implicit race bias: a prejudice habit-breaking intervention.J Exp Soc Psychol. 2012; 48: 1267-1278
- The impact of racism on child and adolescent health.Pediatrics. 2019; 144e20191765
- Accuracy of phenotyping of autistic children based on Internet implemented parent report.Am J Med Genet B Neuropsychiatr Genet. 2010; 153b: 1119-1126https://doi.org/10.1002/ajmg.b.31103
- How well they remember. The accuracy of parent reports.Arch Pediatr Adolesc Med. 1995; 149: 553-558https://doi.org/10.1001/archpedi.1995.02170180083016
Article Info
Publication History
Published online: May 18, 2021
Accepted:
May 10,
2021
Received:
January 19,
2021
Footnotes
Conflict of competing interest: The authors have no financial relationships relevant to this article to disclose. It should be noted Dr. Peter Szilagyi, Editor-in-Chief of Academic Pediatrics, is part of the authorship group.
Identification
Copyright
© 2021 Published by Elsevier Inc. on behalf of Academic Pediatric Association