Abstract
Objective
To assess the number of days that children experienced a health care encounter and
associations between chronic condition types and health care encounters.
Methods
Retrospective analysis of data from 5,082,231 children ages 0 to 18 years enrolled
in Medicaid during 2017 in 12 US states contained in the IBM Watson Marketscan Medicaid
Database. We counted and categorized enrollees’ encounter days, defined as unique
days a child had a health care visit, by type of health service. We used International
Classification of Disease-10 diagnosis code categories from Agency for Healthcare
Research and Quality's Chronic Condition Indicator System to identify chronic mental
and physical health conditions.
Results
Median (interquartile range [IQR]) annual encounter days was 6 (2–13). Children in
the 91st to 98th and ≥99th percentiles for encounter days experienced a median of
49 (IQR 38–70) and 229 (IQR 181, 309) days, respectively; these children accounted
for 52.6% of days for the cohort. As encounter days increased from the 25th to >90th
percentile, the percentage of children with co-existing mental and physical health
conditions increased from <0.1% to 47.4% (P < .001). Outpatient visits accounted for a total of 68.3% and 62.2% of days for children
the 91st to 98th and ≥99th percentiles.
Conclusion
Ten percent of children enrolled in Medicaid averaged health care encounters at least
1 day per week; 1% experienced health care encounters on most weekdays. Further investigation
is needed to understand how families perceive frequent health care encounters, including
how to facilitate their children's care in the most feasible way.
Keywords
To read this article in full you will need to make a payment
Purchase one-time access:
Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online accessOne-time access price info
- For academic or personal research use, select 'Academic and Personal'
- For corporate R&D use, select 'Corporate R&D Professionals'
Subscribe:
Subscribe to Academic PediatricsAlready a print subscriber? Claim online access
Already an online subscriber? Sign in
Register: Create an account
Institutional Access: Sign in to ScienceDirect
References
- Children with medical complexity and Medicaid: spending and cost savings.Health Aff (Millwood). 2014; 33: 2199-2206
- Trends in health care spending for children in Medicaid with high resource use.Pediatrics. 2016; 138: e20160682
- Financial and nonfinancial burden among families of CSHCN: changes between 2001 and 2009-2010.Acad Pediatr. 2014; 14: 92-100
- Risk factors for family time burdens providing and arranging health care for children with special health care needs: lessons from nonproportional odds models.Soc Sci Res. 2015; 52: 602-614
- Employment, family leave, and parents of newborns or seriously ill children.Acad Pediatr. 2012; 12: 181-188
- Parenting stress among caregivers of children with chronic illness: a systematic review.J Pediatr Psychol. 2013; 38: 809-828
- Parenting stress in US families: implications for paediatric healthcare utilization.Child Care Health Dev. 2010; 36: 216-224
- Understanding factors associated with work loss for families caring for CSHCN.Pediatrics. 2009; 124: S392-S398
- Impact of long-term care of children assisted by technology on maternal health.J Dev Behav Pediatr. 1998; 19: 273-282
- Employment, child care, and mental health of mothers caring for children assisted by technology.Pediatrics. 1999; 103: 1235-1242
- A national profile of caregiver challenges among more medically complex children with special health care needs.Arch Pediatr Adolesc Med. 2011; 165: 1020-1026
- Impact of non-medical out-of-pocket expenses on families of children with cerebral palsy following orthopaedic surgery.J Pediatr Nurs. 2017; 37: 101-107
- Insurance mandates and out-of-pocket spending for children with autism spectrum disorder.Pediatrics. 2019; 143: e20180654
- Strategies to reduce hospitalizations of children with medical complexity through complex care: expert perspectives.Acad Pediatr. 2017; 17: 381-388
- Characteristics of hospitalizations for patients who use a structured clinical care program for children with medical complexity.J Pediatr. 2011; 159: 284-290
- Preventing emergency department visits for children with medical complexity through ambulatory care: a systematic review.Acad Pediatr. 2021; 21: 605-616
- Overtreatment in the United States.PLoS One. 2017; 12e0181970
- Comparison of health care spending and utilization among children with Medicaid insurance.Pediatrics. 2015; 136: e1521-e1529
Chronic Condition Indicators for ICD-10-CM (beta version). Agency for Healthcare Research and Quality. Available at: https://www.hcup-us.ahrq.gov/toolssoftware/chronic_icd10/chronic_icd10.jsp. 2020. Accessed December 15, 2020.
- Contributions of children with multiple chronic conditions to pediatric hospitalizations in the United States: a retrospective cohort analysis.Hosp Pediatr. 2017; 7: 365-372
- Timing of co-occurring chronic conditions in children with neurologic impairment.Pediatrics. 2021; 147e2020009217
- Significant reductions in tertiary hospital encounters and less travel for families after implementation of paediatric care coordination in Australia.BMC Health Serv Res. 2018; 18: 751
- Decreasing low acuity pediatric emergency room visits with increased clinic access and improved parent education.J Am Board Fam Med. 2018; 31: 550-557
- What do family caregivers do when managing medications for their children with medical complexity?.Appl Ergon. 2020; 87103108
- Developing future clinical pharmacy leaders in the interprofessional care of children with special health care needs and medical complexity (CSHCN-CMC) in a pediatric pulmonary center.Children (Basel). 2019; 6: 135
- Prevalence and clinical significance of medication discrepancies at pediatric hospital admission.Acad Pediatr. 2009; 9: 360-365.e361
- A qualitative study of health care providers' perceptions and experiences of working together to care for children with medical complexity (CMC).BMC Health Serv Res. 2018; 18: 70
- Families of children with medical complexity: a view from the front lines.Pediatrics. 2018; 141: S195-s201
- Perceived versus demonstrated understanding of the complex medications of medically complex children.J Pediatr Pharmacol Ther. 2021; 26: 62-72
- Medication errors in the homes of children with chronic conditions.Arch Dis Child. 2011; 96: 581-586
- Mental health conditions and health care payments for children with chronic medical conditions.Acad Pediatr. 2019; 19: 44-50
- The association of child condition severity with family functioning and relationship with health care providers among children and youth with special health care needs in Alabama.Matern Child Health J. 2005; 9: S87-S97
- Building medical homes: improvement strategies in primary care for children with special health care needs.Pediatrics. 2004; 113: 1499-1506
Article info
Publication history
Published online: July 17, 2022
Accepted:
July 7,
2022
Received:
February 28,
2022
Footnotes
The authors have no conflicts of interest to disclose.
Identification
Copyright
Copyright © 2022 by Academic Pediatric Association